Can there be justice when your child’s life has been stolen by caregivers who didn’t seem to care? No, not really. Is there justice possible for Eleni, who knew so much suffering in her short life? Never. But there can be accountability, apology, recompense and financial support for the cost of those grevious mistakes.
Read MoreIn 2015, after a healthy pregnancy, I was eagerly anticipating Eleni’s birth. Like you, I was completely shocked when that joyous event turned tragic. What happened? What exactly went so terribly wrong? Here’s the story I can finally tell.
Read MoreI spoke to her of Eleni when she was only days old. I remember standing before Eleni’s photos and the words I needed to say out loud, This is your sister, Eleni. I held my new, healthy baby close and felt how hard it would be to tell her this story when it mattered to her.
Read MoreSome of my favorite quilts tell a story. They capture a moment of joy or pain or expectation. They bottle that feeling with color or shape or clearly distilled memories of time spent processing emotions, cloth in hand.
Read MoreIt has been an amazing six months with baby Elora. Today I'll share some reflections on what it's like raising a healthy baby after the tragic injury and loss of sweet Eleni.
Read MoreSoon I had a pile of pieces too stained to keep, but too precious to throw away. They are ones that remind me of particular times. They are each a memory.
Read MoreHIE stands for Hypoxic Ischemic Encephalopathy and refers to brain damage caused by lack of oxygen...
Read MoreI caught a song from my friend. Mothers do that, of course. They catch songs from other mothers to sing to their children...
Read MoreI wrote this piece for my baby, to be read at her service yesterday. Dear Eleni...
Read MoreI wrote you last about Eleni at the close of 2015. We had a wonderful, wonderful week and a half. She was resting well for the first time...
Read MoreI have been looking forward to writing this update because things have been looking up this month!
Read MoreBecoming big brother and sister is often a rocky transition, but when baby is so different than what we've all imagined and prepared for...
Read MoreI wonder if for me November has been a sort of turning point. There was a two week period when I felt happy again.
Read MoreOh, my friends, what a difficult time it's been! I wish I could bring you better news.
Read MoreWe are home from the hospital now... for the second time in two weeks. Eleni has had some sort of virus for about three weeks now.
Read MoreToday Eleni is 6 months old. This morning I was a swirling pot of anger, resentment, despair; but, sitting down and letting some out helped some.
Read MoreToday, in her blue eyes, I still see a pang of sorrow. Hers and mine. I also see the beauty that others see. And the injury too...
Read MoreAlright, are you ready for another update? This has been such an eventful month for us. Eleni had two important tests...
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