Tuesday, January 19, 2016

Eleni's passing

A year ago on January 18th, Eleni was tucked in my womb.  On that day we were surrounded by ladies who prayed for and celebrated her impending arrival at my baby shower.  It was the sweetest baby shower.

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I wrote you last about Eleni at the close of 2015.  We had a wonderful, wonderful week and a half.  She was resting well for the first time in her life, so she was able to take in the world and respond to us in a whole new way.  I am so grateful for those days because I know that she really knew me, really felt my love and the love her family.  I know if she'd had more time like that, she would have smiled soon.

 Eleni Laura Hauser

In the early days of 2016, our beautiful baby began declining.  I resisted accepting that her post-surgical gains had evaporated so soon.  Was I being dramatic?  Making much of nothing?  But by January 3rd all the worry signs were clear, so I took her to Charleston children's hospital for the best care our state has to offer.   Over a week's time in the hospital, we discovered that her weak throat muscles had developed a new area of obstruction, unfortunately an inoperable area worse than ever.  The doctors said it could get better or worse.

On January 10th at 1 am the ambulance came for her.  She had completely stopped breathing, stopped trying at all.  I had reached her and stimulated her to breathe before it was too late.  Such a night.  We didn't bring her home from the hospital again until we had a bi-pap machine for her to use while sleeping - all sleeping, naps and at night.  And I hoped again.  Maybe with the help of this breathing machine she would have quality sleep and reclaim those December gains.

 Eleni on bipap for breathing

But last week, last week was terrible.  Day by day my heart was pried open to the reality of letting her go.  We stayed awake with her at night to prevent her from slipping away.  She became more sleepy during the day, needing to wear her bi-pap mask nearly all the time and then endured several days in pain before it became clear that her body was shutting down and there would be no recovery for her on this earth.

In two weeks it all changed.  Emotional whiplash.

On January 18th, 2016 sweet Eleni passed away at home in the arms of her father and surrounded by some of our dear ones who celebrated her arrival a year before.  We are both tear stricken and joyful; crushed and lightened, for our child that suffered so much in 10 short months is now completely free from pain and struggle and fear and even from those limitations that so unfairly bound her.

I imagine right now she is learning to roll over to her tummy, and she is amazed how easy it is to lift her head and look about.  Surely she'll recall when she sucks and swallows with her own dear mouth that this is what mom was trying to show her, this is what we all wanted for her with all our hearts.  And what is to come for her is better than we could ever offer her on this earth.   She will grow into the fullness of the human she was meant to be.  And I will know her again.  And I will see her smile.

There is more for me to say, but this is well for now.  We are blessed, so blessed with abundant support from family and friends.

On Friday we will hold a service for Eleni Laura Hauser.  You may send cards to Columbia Church at PO Box 118, Irmo, SC 29063.  In lieu of flowers, consider making a donation to a children's charity of your choosing, in Eleni's name.

Or, if you like, I have decided to facilitate a temporary collection for babies like Eleni with moderate to severe brain damage from birth injury.  I will distribute funds to families who would like to try ABM for their children or to visit Dr. Zelinsky, the optometrist in Chicago who helped Eleni so much.  These are the therapies that gave us hope and courage when mainstream medicine could not.  We were so fortunate to have the means gifted to us to do everything we could to help our child. Would that it were so for more children and for more heartbroken parents!  For details and to donate see the fundraiser here.  After February 2016, I'll close the fundraiser and distribute funds.



Thank you for your prayers, love, and virtual hugs.  You have been an amazing group of women (and men) to walk with during this most difficult year.

Sincerely and with deep gratitude,

Rachel Hauser



612 comments:

  1. What a shock to read this. An enormous virtual, comforting hug for all of you. Thinking and praying and I wish you all the courage and strength you need the coming time.

    Dutch greetings, Carolien

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  2. I'm sooooo sorry for you all. You are the best parents Eleni could dream of. She has a place in the hearts of people all over the world!
    Condolences from Belgium, Europe.

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  3. I am so sorry for your loss! I am a regular reader, but don't often comment. Prayers to you and your family.

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  4. My heartfelt condolences to you and your family. I wish you strength.

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  5. I am so sorry for your loss... but not sorry for Eleni's freedom from pain. Wishing peace for her spirit and for your family.

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  6. Praying that God will grant you, your husband, and your children strength to deal with the days that lie ahead. Praying that your support system will help you and your family as you need it, that they will help you as the grieving continues to unfold in this new way.

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  7. Oh Rachel, I don't know what to say. I have tears streaming down my face for so many reasons - for the sadness of her passing, for her freedom, and out of happiness that you have faith to carry you through this experience. Eleni was so lucky to have you as her mother.

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  8. There are no words, but know that you and your precious family are in my thoughts and prayers and may you find peace in knowing that your darling Eleni is resting well in God's arms. Thank you so much for sharing so much of her with us.

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  9. I'm heartbroken for you and your family! Prayers and strength for you and your family.

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  10. There are no words that can be right - please know that you and your family are being held in our hearts - and hugging you as tight as you need .

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  11. Not too many words to say. My heartbroken to hear the news. My heartfelt condolences to you and your family.

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  12. My heart leapt to my throat when this popped up. I am so sorry for your loss, but your description of her current full healing brought tears to my eyes, because I believe you are right. My prayers are with all those who love Eleni. Thank you for sharing your joys and struggles and teaching us all about unconditional love.

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  13. I am so sorry. Praying for peace in your family.

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  14. Oh I am so sorry for your loss. I can't even begin to imagine what it would be like to lose a child.

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  15. I’m without words and heartbroken for you and your family. My heartfelt condolences to you all. Sweet Eleni and her beautiful Mum have taught us so much! Take care!

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  16. Oh Rachel, I'm so sorry that you and your previous family have had to endure such heartbreak over the past 10 months. Sending many hugs and prayers your way.

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  17. I am so sorry for your loss. My prayers are with you and your family.

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  18. Oh Rachel, I'm so sorry that you and your previous family have had to endure such heartbreak over the past 10 months. Sending many hugs and prayers your way.

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  19. With tears, I say, "I'm so so sorry." I'm heartsick to hear of Eleni's passing, yet there's that spark of joy at her healing. Bless you, Rachel and family, during these most difficult of days...

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  20. You and your family are in my thoughts.

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  21. No words can express what I feel. I wish you and your family courage to overcome this loss.

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  22. There are no words that can make this any easier. May Eleni find peace resting in God's arms as he gives you all strength to walk this journey. Sending virtual hugs.

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  23. Rachel, my heart is broken for you. I am in tears. But I also know that Eleni is blessed and in peace. Prayers to you and your family.

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  24. Prayers and condolences to you and your family. Thank you so much for sharing the journey, both good and bad. It will take time, I wish healing for your family. Elena will always be a part of your lives.

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  25. My heart is breaking for you. What a gift that Eleni will know a full healing from a Heavenly Father that loves her so. May you and your family find peace and courage in this difficult time.

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  26. I am so sorry. The words in your post say it so well that I feel comforted. Thank you for sharing all of Eleni's brief life with all of us.

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  27. I'm so sorry Rachel. Eleni knew that she was loved. May you have peace in the days and years to come.

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  28. Rachel, your posts about Eleni over the past several months have been so honest and open. I don't know if I ever left a comment, but your blog always left me so moved, and with so much respect for the strength of your family in the face of something so difficult. I know I would not be anywhere near as articulate under the same circumstances. Thank you to you, your family, and beautiful Eleni for teaching me some truly valuable lessons. You're all in my thoughts. Thank you for everything you've shared with the world.

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  29. I'm so so sorry for your loss. I'm sending you healing and peaceful thoughts.

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  30. I'm so so sorry for your loss. I'm sending you healing and peaceful thoughts.

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  31. I am so sorry to hear of Eleni's passing. My thoughts and prayers are with you and your family at this time. Wrap yourself in one of the quilts and know that the quilting community is hugging you at this time.

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  32. Oh Rachel, I am so very sorry to read this. You are filled with grace and it shows to all of us. Peace to you all and Eleni.

    I'm sure you are holding your family close but please give your big two a huge hug from me. I remember the pain of losing a sister.

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  33. I'm so sorry for your loss. Goodbye sweet Eleni...

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  34. Dear Rachel,

    I just don't really know what to say. Im sitting here, crying and deeply touched, in front of my Computer and can't believe what you have written. I have read everything you have written since Eleni came into this world and struggled, hoped and prayed with you and your family. My english is way to bad to write down what I really want so say. I am crying with you. Barbara from Germany

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  35. Eleni is loved, deeply, by more people than you can imagine, all over the globe. But none loved her so sweetly as her family. May you find comfort in each other.

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  36. I am so sorry that you lost Eleni. Please know that I'm sending you and your family prayers and courage and strength and love.

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  37. Hi! I've never posted before but I've been reading your blog since just before Eleni was born. I wish I could give you a hug... So here's a verse instead:
    Wait on the Lord. Be of good courage and He will give you strength. Wait, I say, on the Lord. Psalm 27:14
    Jean
    New Zealand

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  38. My condolences to you, your husband and all your family. My thoughts and best wishes are with you all. Jenni in the Uk

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  39. My heart breaks for you and your family. Sending you prayers and holding on to the visions of Eleni healthy and strong.

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  40. Rachel, I offer you and your family strength to cope with your unimaginable loss. I was as shocked as others were to read the heading of your post. Be so very proud of your endeavours to support Eleni and give her an assisted life. Best wishes for your future.

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  41. Rachel, my heart is breaking for you and your family. I am so sorry to hear of sweet Eleni's passing. Please know that I am thinking of you all and sending you love

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  42. This has been such a difficult year for you all. I hope that you all find continued peace. You were a wonderful mother to Eleni.

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  43. So sorry to hear of Eleni's passing. Thinking of you and your family.

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  44. My heart missed a beat when I read the first words of your blogpost. I'm so sorry for you loss.
    My thoughts and best wishes to you, your family and everyone that loved and cared for Eleni.
    Saskia from Germany

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  46. Oh my, I am so, so sorry to hear this. You and your family and sweet Eleni are in my thoughts. Condolences to you all.

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  47. I am so, so sorry to hear this. My thoughts are with you guys and I cannot believe that this has happened. I wish that there was anything that I could do or say to even take a little of your pain away. I stretch out my arms and give you a big big hug from The Netherlands.
    Esther.

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  48. Words are not enough to express how sorry I am for your loss. I will be praying for you, your husband and children in the coming days. May His peace which passes all understanding bathe each of you.

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  49. Oh Rachel. I cannot even begin to imagine what you are going through and I am so so sorry to hear this. Know that you and your family will be in my thoughts.
    Big big hugs to you xx

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  50. Peace and love to you and your family--Torina

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  51. My condolences to you, your husband and all of your family. It's an unimaginable loss. There is so much unfairness in it all. Warm wishes from the west coast.

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  52. So, so sorry, Rachel. You will be in my thoughts and prayers. All of you. <3

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  53. I honestly have no idea the right words. But like others, I wish you so much peace and love.

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  54. My sincere condolences to you and your family. Love from Switzerland

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  55. My goodness, I can't even think of what to say, but to offer my deepest condolences. Very sad news.

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  56. My heart aches for the loss of Eleni and shares in your joy of her beautiful freedom from the constaints of this world. Thank you for sharing your beautiful journey of love with your angel. You are surrounded by light and love. I think of you often Rachel and I send much love to you and your family.

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  57. Oh Rachel, I am so very sorry for your loss. You and your sweet family will be in my thoughts.

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  58. Oh no. I am so sorry for your family's loss. You and your family and little Eleni are in my thoughts. Condolences to you all. May you find strength in each other in this difficult time. Warm wishes from Germany.

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  59. My condolences to you and your family. I will be thinking of you often this week, and wishing your family peace and strength as you heal.

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  60. My warmest condolences to you and your family. Sending you strength and love from Germany.

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  61. Oh no, I am so sorry for your loss. I am sending positive thoughts to you and your family.

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  62. I am so sorry for your loss and your family's loss. My deepest sympathies to you all.

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  63. Dear Rachel,
    I'm so sorry for you and your family! I know, Eleni will be there everytime and everywhere you and your family will be. And she will be surrounded by other family members all the time.
    I just got to know, that I'm pregnant again after the miscarriage last May. That was a horrible situation and still is, but I cannot image your feelings at all. So, I send you big hugs and power for the following weeks and months. Thank you sooo much for sharing your experience and feelings with us. It gave us so much power and the knowledge, that there are always beautiful moments whatever will be.
    xoxo! Greetings from Germany, Rike

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  64. Peace be with you Rachel and your family. May you find joy in her beautiful memory.

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  65. Heartfelt sympathies, from my family to yours.

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  66. Dearest Rachel I'm so sad little Eleni didn't pull through, you did everything right, and I'm sure she knew how much you all cared and loved her......deep breaths my friend Clare xx

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  67. Dear Rachel, It is times like this that words do not seem enough. I don't know what to say except you are in my thoughts and prayers, along with your whole family and of course, Eleni. What a strong, beautiful fighter she was through those months...and what a wonderful chance you gave her. I think Eleni has taught us all a valuable lesson of courage and pluck to all of us who followed her journey. Sending you virtual hugs during this difficult time. xo Wendy

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  68. I am so sorry for the brokenness this has caused in your family, but share with you the belief that she is now perfectly herself and well.

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  69. Dear Rachel, I'm shocked and saddened to hear this. My deepest condolences to you and your family. Praying for comfort and strength for you and your family during this difficult time. ---Nicole

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  70. I am so sorry to hear this. My deepest condolences to all your family. Prayers from Boston.

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  71. We've never met, but I am sat sobbing my eyes out reading this. I can't even begin to imagine what you and your family are going through. I can't say anything that might make it even a smidge better. But know that there people out here who even though we've never met you, are grieving with you and for you, and wish we could take all your pain away.

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  72. Dearest mom, you have an angel in heaven now, rejoicing in the freedom of pain and boundaries. We are here praying for strength and comfort, for you, your children and your husband. LOts of love, Mariana

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  73. I have tears, tears for a family I don't know other than these snippets of your life you have chosen to share with us. Eleni is an amazing strength an a blessing. Her short life is a celebration. Love and light, strength and healing and my deepest condolences. Hugging my daughter a little closer and longer tonight. Tears and prayers from Hobart Tasmania (Australia) xx

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  74. I am so very sorry for your loss. You have shown such courage and love and I know it will see you through this difficult time,

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  75. I'm so sorry for the passing of your sweet baby. You were the family eleni needed to come too. Sending you love and prayers from Australia xx

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  76. Tears, virtual hugs and lots of prayers coming your way from GA...my heart is breaking with you and I can only find hope in the peace we have that God is giving her a big hug and welcoming her home.

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  77. I'm so very sorry. I've always been in awe about how amazingly you cared and fought for your little girl. She was so lucky to have you as her mother. All the best for you and your family. Anja, Germany

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  78. My heart breaks for your family. May you find comfort in each other and your faith during this difficult time.

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  79. Dear Rachel:
    Thank you so much for writing about Eleni and the time you had with her. That kind of honesty and vulnerability is very hard and you shared your experience (and a bit about how the kids felt and what they experienced) with so much grace and eloquence and generosity. You gave voice to many feelings others would be scared to share openly. I really admire your bravery in doing so and your dedication to making Eleni's well-being the best she could have while she lived. I wish you all the comforts you need to ease your pain.

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  80. I am so sorry for your loss. As others have said...may you find peace in knowing that she is whole now in God's Kingdom. Be gentle with yourselves as you grieve. Many of us continue to pray for you.

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  81. You and your family are in my thoughts and in my heart.

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  82. Dear Rachel, I'm crying for Eleni, you and your family. Sweet Eleni is now an angel. We will always remember how beautiful and strong she was. Hard to find words ... my deepest condolences.

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  83. Shock & heartache for you. Prayers and tears from Dallas, TX. I've followed her progress since your pregnancy and I'm so encouraged in your beliefs that she is welcomed to her permanent, painfree, joyful home now.

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  84. What a journey for you and your family through the most important lesson we all learn sooner or later...the frailty and preciousness of life. Much love and peace to your family. I enjoyed and prayed for your pretty little girl and all of you. God bless.

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  85. Sending you so much comfort and love! Thank you for sharing Eleni's story with us. She has certainly left a mark on the world in her too-short time here.

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  86. I was shocked to see the post's title, and am in tears at my desk. I have followed your heart wrenching story this past year full of hope for Eleni...and for you and the difficulties you both faced. She is free now, and that will with time I hope bring you all peace.

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  87. I'm so sorry and am praying for you all.

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  88. So very very sorry for your loss of lovely Eleni...you are an inspiration and such an amazing mommy Rachel...thank you so much for sharing your journey and your beautiful baby with all of us...you all are in my thoughts & prayers...sending love from Ireland x

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  89. My best healing wishes to your and your family, I am so sorry to hear of Eleni's passing.

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  90. I don't know you--other than through this blog where you have shared so much of yourself. I am so very sorry for your loss.

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  91. May you and Brandon find comfort and strength in the love and support of your families and friends. I send a special hug to Aria and Liam. Holding all of you in my heart ....

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  92. Rachel, I'm so sorry to hear about your loss. May you and your family find peace, knowing that Eleni is in a loving place, free of suffering. Thank you so much for sharing her with all of us. She was loved by so many.

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  93. Sending you love and peace. You and your family will be in my heart and thoughts.

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  94. So sorry for your lost! A big hug for all the family, and big thanks for sharing with us. She will always be with us thanks to you.

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  95. There are no words. I am so sorry for the suffering of your dear child and your family through this time.

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  96. There are no words. I am so sorry for the suffering of your dear child and your family through this time.

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  97. Oh I held my breath when I read the title. Such sad news. I have been so humbled by your honestly and bravery as you shared your journey with Eleni. My thoughts and prayers are with you and her.

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  98. I am so very sorry for your loss, Rachel... My heart, thoughts & prayers are with you and your family. Xoxox

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  99. Heartbroken for your loss but certain that her little soul is smiling.

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  100. I am so very sorry for your loss, wishing you lots of strength in the days and weeks ahead.

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  101. So much love for you and your family and sweet Eleni.

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  102. I am devastated for you. I've been following along with your updates, and you've constantly been on my mind. Prayers for you and your family.

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  103. Oh Rachel, I am sitting with tears streaming down my face. You have shown such amazing strength and love through her entire time on earth, you and she were blessed to have each other. My thoughts and prayers are with you and your family, thank you for sharing your journey with Eleni here, you have inspired so many people. God Bless you.

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  104. My thoughts are with you and your family. I am so sorry xxx

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  105. Oh Rachel, I do not have the words. I'm so, so, sorry. It has been a privilege to follow your family's journey and Eleni's struggles and improvements. I wish your family strength and peace as you remember your darling girl. x x x

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  106. Thinking of you and your family and wishing you strength and love. What a lucky girl to have you on her side…and I'm sure you feel blessed to be her mother.

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  107. Oh my, I am so terribly sorry. I have followed Eleni's journey from the beginning, I rooted for her, cheered for her, cried for her. Thank you for sharing Eleni with us all. May God give you peace and strength.

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  108. Oh Rachel, I am so sorry to read this! Eleni was a beautiful baby girl and I had such hope for her. My thoughts are with you and your family. :(

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  109. Rachel I could no believe when I saw your post heading- just could no believe it and I am sitting here at the computer in tears.
    I, like hundreds of others, have followed the story of your beautiful Eleni - I am at a loss with words right now. God Bless you all and may Eleni rest in peace. You are in my thoughts and prayers.

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  110. So shocked and heartbroken for you and your family. Eleni has been the luckiest baby to have you for her parents. I have read your story since the beginning and have felt the strength in your love and care for her and rejoiced at her progress, limited though it was. She will no longer struggle and suffer and was the most loved of daughters.

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  111. My heart breaks for you and your family Rachel. What a shocking loss. You were such a champion for Eleni's cause. Thinking of you xc

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  112. Rachel, I am sorry to hear about Elena ' s passing. There are no words that may replace the pain you and your family is feeling. You have her the best in life that she could have while she was here.

    My thought and prayers are with you and your family.

    Sheri

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  113. I have no words to express my heartbreak on your behalf. I'm shocked, and crying. May God pour out His love, comfort, and peace over your family.

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  114. Oh Rachel, I'm so glad that Eleni is with God now and that you can take comfort in the fact that she's comfortable and happy. I'm so so sorry. You, the kids, and your husband will be in my prayers.

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  115. Oh, how saddened I am to hear this! And yet also strengthened by your beautiful expressions of love for this dear little one who was with you so briefly. May the Lord of all comfort hold you all tight in His arms as you grieve and look forward with hope to once again seeing Eleni in the place where there are no more tears.

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  116. Peace and strength to you and your family. I am so sorry for your loss. God bless you.

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  117. “You - you alone will have the stars as no one else has them...In one of the stars I shall be living. In one of them I shall be laughing. And so it will be as if all the stars were laughing, when you look at the sky at night...You - only you - will have stars that can laugh.” ― Antoine de Saint-Exupéry, The Little Prince

    sendig you love and love and love and love

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  118. I don't have anything new to add to all the heartfelt outpourings of grief for your family. Lovely Eleni taught us all something.
    Hugs

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  119. Oh Rachel. My heart is breaking for you and your family. I know that God is with you and I pray that you are feeling His peace. That is all, there is nothing more to say. Love to you all!

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  120. I'm so sorry Rachel. I hope you and your family can find strength and healing in the days/months/years ahead.

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  121. I am so sorry to hear this. Keeping your family in my prayers.

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  122. So much love to you and your family. I am sure Eleni is smiling down from Heaven as perfect as ever and I know you will be with her again someday. I pray the Lord will bring peace and comfort to you and your family.

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  123. Rachel, words are never enough but I'm so sorry for your loss. You and your family have had so much love for Eleni and so much courage for her. She was lucky to have you fighting for her. I hope you will find peace in your heart knowing that you did all that was possible for her. Love and hugs to all of you.

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  124. So sorry to hear about Eleni. Like many, I have been following her progress and praying for your family.

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  125. You and your family are in my prayers.

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  126. I'm so sorry to hear your news. You are a wonderful mother and may you take comfort in the fact that you gave Eleni the best. Hugs.

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  127. Oh dear Rachel, I am so sorry to hear this news. You are all in my heart.

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  128. What a beautiful little life, and a much more beautiful Mommy! God bless you in your grief!

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  129. I don't have anything new to add, but I am another voice saying that I am so sorry for your loss and that I am thinking of you.

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  130. I'm so sorry for your loss. I hope that the thoughts and prayers of all these relative strangers provide some small comfort to you and your family x

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  131. I'm so sorry for your loss. I hope that the thoughts and prayers of all these relative strangers provide some small comfort to you and your family x

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  132. I am so very sorry for your loss. Elena was beautiful. No words are appropriate at this time, so let the prayers and thoughts of friends and strangers alike surround you in the coming days.

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  133. I am so sorry for your loss. Thank you for sharing Eleni's story and bless you for all your bravery and love. My thoughts and prayers...

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  134. I too sobbed sitting here at my desk - for your loss, for Eleni, for your courage and vulnerability - we, your blogland/quilty friends, acknowledge your pain and we sit with you in that pain. Thank you for sharing beautiful Eleni with us xxx

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  135. As with everyone else, I am so sorry for the passing of your sweet little angel. Heaven is greatly blessed. My thoughts and prayers are with you and your family.

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  136. I'm so very sorry for the loss of your lovely little girl. My thoughts are with you and your family.

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  137. I am so sorry your sweet little girl has left you so soon. So very many of us have been touched by her presence on this earth. We've been moved to tears of sorrow and joy as we have read about her challenges and milestones over the last 10 months. How your heart must ache, and yet.... Praying for peace and comfort.

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  138. I am so very sorry for your loss,may God bless you and your family and keep little Eleni in his tender arms. You are all in my thoughts and prayers

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  139. So sorry for your heartbreaking year, so privileged to see what a honest, caring, devoted mother you are. May Eleni know that many loved her through you and may she find joy....

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  140. Rachel, I am so so sorry for your loss. There are no words ....

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  141. My heart goes out to you and your family! Prayers are with you and your wonderful family!
    God bless!

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  142. Rachel, I am so so sorry for your loss. There are no words ....

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  143. My heart is breaking for you and your family Rachel. Your words about Eleni's life and about how she is whole now are so touching. Someday when you meet again, she will tell you that she knows she was ever so deeply loved. My thoughts and prayers are with you.

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  144. Prayers to you and yours. I'm so sorry.

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  145. My deepest sympathies to you and family. My prayers are with you.

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  146. My heart aches for you and your family. May you be wrapped in love and prayers.

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  147. I followed this story from the beginning and hoped for the best. I'm so sorry, and yet I'm so glad that little angel no longer suffers. How brave, wonderful and loving you are. How hard you battled. How much you did! A whole lifetime of doing and caring and battling and loving.... in the space of ten little months. You are forever changed, I'm sure. I wish you peace. And loving arms to rest in.

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  148. If love could have saved Eleni she would have lived forever. My deepest condolence for your family's loss.

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  149. Deepest sympathy to all of you.......

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  150. Deepest sympathy to all of you.......

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  151. I am so sorry for the loss of your precious Eleni. We've never met but I have been reading your blog and followed the ups and downs of your journey. My heart goes out to you and your family.

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  152. Sweet Eleni will never be forgotten.
    Love and strength to you and yours.

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  153. I too am so shocked. This is not was I expected and read as fast as I could - thinking...this can't be. I'm taken back to a time when I watched a suffering loved one pass. I remember the incredible sense of loss paired with the comfort of relief. They deserve more than to suffer in this life. I too know you will see her again and till that day, she will be smiling and playing wildly for you all. I will miss her updates. She really touched us all.

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  154. Oh, Rachel, there are just no words. Thank you for sharing Eleni, and for sharing your profound love for her, with us. My heart breaks for your unimaginable loss, but I love that she can now move and breathe freely and smile at her sweet mama. Much love to you and your family.

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  155. I am so sorry for your loss. Eleni touched all of our hearts and we are so grateful. May she rest now in peace. And may you and your family have peace here on earth as well.

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  156. I am so very sorry for your loss. I have been reading all your updates about sweet Eleni all along. May all of you have peace knowing she is in a beautiful place happily playing. No words can help you all now, I understand that. Knowing you have all of our support helps you all get through and have peace. Much love to you and your family.

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  157. Oh Rachel there are no words. Sorry just doesn't cut it! This isn't the way it's supposed to be. I'm just happy that your gorgeous little girl is suffering or in pain anymore. I remember how desperately you wanted another child. My heart goes out to you all. All my Love Patti xxx

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  158. My thoughts and prayers are with you and your family. My heart aches for your loss. May the Lord bless you and keep you.

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  159. I'm so happy that Eleni is no longer in pain and that she was able to know you before she passed. Prayers for your family!

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  160. I'm so sorry for your loss Rachel. My deepest sympathies to you and your family.

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  161. Rachel, my heart goes out to you. Keeping you and your family in my thoughts and prayers.

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  162. Rachel, Eleni was beautiful. May God give you peace.

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  163. Eleni,, your sweet angel, has touched so many lives. Thank you for sharing her story so openly, and with such grace, and providing support for babies like Eleni and their families. Love to you & your family.

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  164. Sending my prayers for you and your family. Thank you for your strength to share Eleni. You are such a wonderful mom. Hugs.

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  165. Sending love and hugs. I am thinking of you and your family at this sad time xx

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  166. Oh Rachel. My heart is with you

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  167. I am so sorry to hear about your loss, my thoughts and prayers are with you.

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  168. Oh Rachel. How sad, in so many ways.
    You did the best you good for your little girl and she was loved.
    My best to your family and the life ahead for all of you. She will be missed.

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  169. I am so very sorry for your loss.

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  170. I am so very sorry for Elena ' s Passing And I thank you for sharing such heartbreaking words. She was so blessed to have you as parents.

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  171. Oh Rachel! Thank you for sharing Eleni with us these difficult months. Love to you and your family.

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  172. So many heartfelt responses to your news, Rachel. You are so greatly loved and cherished.
    I have no eloquent words. I know your grief, but also the joyful release of Eleni, your baby that you loved so much. She did know your love. God gave you Eleni for a while, and now He called her home.
    Rachel, all of you, Brandon, Aria and Liam and your wonderful extended family, all of you are in my prayers. Take each day slowly.

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  173. I'm very sorry for your loss. You and your family are in our prayers.

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  174. Hugs and love to you and your family, dearest Rachel. God blessed Little Eleni with an amazing family and allowed His little angel to touch all of our lives through you. One day you will get to hold your perfect child again in heaven.

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  175. Adding my sympathy and prayers for your lovely family.

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  176. I have followed Eleni's story from a far. Never commenting, just silently hoping and praying for a miraculous turn around for her. To read of her passing brought me to tears. I'm praying that you and your family can find comfort in this very difficult time.

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  177. Aww man. I am so sorry. My sincerest condolences to you and your family.

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  178. My thoughts and prayers are with you and your family. Hugs to all of you

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  179. I was shocked to read the title of this post. While I rejoice that Eleni is now made whole in heaven, my heart breaks for you and your family. I have looked forward to the monthly reports on Eleni's progress. I will miss those. Your beautiful daughter touched my life. Thank you for sharing so openly and honestly with your readers the joys and struggles of life. Prayers, hugs and much love to your family.

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  180. Oh Rachel, I'm so sorry. I've followed your Eleni updates since she was in your belly. Though I never had the joy of meeting her, I always looked forward to hearing how things were going and celebrating her improvements and weathering her setbacks. My heart hurts for you and your family. I'm praying for all of you during this time of loss.

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  181. Absolutely heartbroken for you and your family. Thank you for sharing Eleni's story so bravely - I'm sure it will bring others hope and courage. I will be praying for you all, that you might find some comfort in the coming days. Rest in peace sweet Eleni xx

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  182. Oh boy, my heart goes to you and yours.
    hugs
    Teena

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  183. I am heartbroken for your family's loss of sweet Eleni. You fought so hard for her, and she was so brave in her suffering. I pray that God's peace would comfort your family during this difficult time.

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  184. Prayers for you and your family....there are no words.

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  185. Hauser family - Brandon, Rachel, Aria and Liam - my deepest heartfelt condolences. Your family met a challenge many of us never have to face, with courage, grace and boundless love for your dear Eleni. Be sure she is at peace. My prayer is that your hearts will also find peace. Grace and love, Sue

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  186. My heart aches for you and your family. Please know you continue to be in my prayers.

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  187. My heart is breaking for you. My thoughts and prayers and virtual hugs are with you and your family.

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  188. I am so sorry for your loss. My prayers are with you and your family.

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  189. I am so sorry for your loss of your beautiful daughter. I will be remembering you and your family to Jesus and asking Him to comfort your hearts.

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  190. I am so very sorry to hear this. I hope as time passes, you be able to remember the happy times you had with her. There will be so many praying for you and your family. My deepest sympathy. No words seem right or consoling.

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  191. May Eleni's memory be eternal. May your grief and suffering be brief. There are no words to say that fits this. Your family modeled truth, joy, and sacrificial love through your caring of Eleni and each other. All because of Eleni. Those of us who read your blog have been touch and changed, for however long because of Eleni. Your little angel accomplished much in her short life. Not many can say this.

    Alicia in New Zealand

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  192. Like many here, I was surprised and saddened to hear this news, especially after little Eleni made such progress in December. Her life has touched many hearts and you have been such a strong person to share her story and your story with us. I send your my warmest thoughts as you begin to learn a different life again and I have faith that you will see your beloved again. Hugs

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